I have created a letter that I am providing to my clients who have hypermobility/EDS to help them be able to hopefully receive a proper evaluation and treatment. The letter is FREE. It is written under my credentials as a Licensed Professional Counselor and lists an extensive number of symptoms related to this disorder as well as background information. It says that I have worked with you and that we have discussed the condition and identified a number of symptoms. I recommend that you be evaluated.
You would print out the letter, check off the symptoms that apply to you and take it to your PCP or other healthcare practitioner. If they cannot evaluate you themselves, perhaps they could refer you to someone who can. I hope it is at least a start. I’m working hard to raise awareness.
Please email me if you would like a copy of the letter. If you suspect that you may have this, check out my instagram for more information and make an appointment on my website. It is a very common, commonly misdiagnosed, or ignored condition that impacts nearly every part of the body. It took me over fifty years to be properly diagnosed.